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Uniting for a Cure

Lily is a bright, beautiful soul whose strength continues to inspire everyone around her. Since her Rett syndrome diagnosis, her family has been navigating complex medical challenges while staying focused on what matters most: Lily’s comfort, joy, and quality of life. We are standing with Lily and the thousands of individuals whose voices have been taken by Rett syndrome. Research offers a path forward, and your support helps move that work closer to the lives it’s meant to change.

💝 Thank you for walking this path with us.


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The Rett Syndrome Research Trust is a 501(c)(3) non-profit (EIN 26-0687439). Your gift is a charitable contribution and no goods or services have been exchanged.

Research is at a pivotal time.

After years of foundational work, progress across the field has accelerated. RSRT has played a central role in getting us to this stage, and now it must build on this momentum and drive us towards genetic medicines that can change lives. We need your help more than ever in order to do that.

Why your gift matters:

🧬 Breakthroughs in science are happening fast.
🔬 RSRT is focused exclusively on cures.
💪 93% of every dollar fuels this work.

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